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Abstract
Purpose
This study tries to explore experiences with a special rating dementia service among family caregivers of elderly people with dementia.
Methods
The participants were 11 family caregivers of elderly people with dementia and had used a day-care service from the special rating dementia service for more than 3 months. Data were collected through individual in-depth interviews and analyzed using content analysis.
Results
Three categories emerged: “reminiscence of an entangled life”, “feeling relieved from a stifled life”, and “hope for a better life through help and support” with 8 sub-categories and 23 codes. By using the special rating dementia service, the participants experienced relief from the burden of caring for their elderly family member with dementia and restored their social relations or family relationships. They experienced a positive transition in which their caring for elderly family members with dementia was integrated into their daily lives, and they expressed their desires for better policies.
Conclusion
These findings imply the importance and necessity of the special rating dementia service. Practical and systematic family support programs are necessary and proactive publicity activities by the government and public agencies are suggested to ensure that family caregivers can easily use the special rating dementia system.
References
1. Nam HJ, Hwang SH, Kim YJ, Byun SJ, Kim GW. Korea dementia observatory 2017. National Institute of Dementia Report. Seongnam: National Institute of Dementia;2017. December. Report No.:NIDR-1704-0019.
2. Lee JS. The implication of long-term care on five rating (demen- tia special rating). 2015 Winter Symposium of the Korean Association for Public Management. 2015. Dec 11; Dankook University, Cheonan: The Korean Association for Public Management; 2015 Dec. 134.
3. Kim BN, Byun SJ, Lee OJ, Kim YJ, Nam HJ, Kim GW, et al. Global trends of dementia policy. National Institute of Dementia Report. Seongnam, Gyunggi: National Institute of Dementia;2017. December. Report No.:NIDR-1701-0016.
4. Sung MR, Yi M, Lee DY, Jang HY. Overcoming experiences of family members caring for elderly patients with dementia at home. Journal of Korean Academy of Nursing. 2013; 43(3):389–398. https://doi.org/10.4040/jkan.2013.43.3.389.
5. Oh H, Sok SHR. Health condition, burden of caring, and the quality of life among family members of the elderly with senile dementia. Journal of Korean Academy of Psychiatric and Mental Health Nursing. 2009; 18(2):157–166.
6. Fauth EB, Gibbons A. Which behavioral and psychological symptoms of dementia are the most problematic? Variability by prevalence, intensity, distress ratings, and associations with caregiver depressive symptoms. International Journal of Geriatric Psychiatry. 2014; 29(3):263–271. https://doi.org/10.1002/gps.4002.
7. Park SH, Kim TH. The effects of internalizing behavior problems of patients with dementia in predicting family caregivers' burden, depressive and physical symptoms. Korean Journal of Health Psychology. 2016; 21(1):65–89. https://doi.org/10.17315/kjhp.2016.21.1.004.
8. Yoo MS, Kim YS, Kim KS. A study about health related quality of life, burden and coping ability for family caregivers caring for dementia elderly. Journal of the Korean Gerontological Society. 2010; 30(4):1117–1127.
9. Cho YH, Kim GS. Family caregivers' burden and needs for a professional help by the symptom level of the elderly with dementia. Journal of the Korean Gerontological Society. 2010; 30(2):369–383.
10. Kim CW. A study on the social aspects of the performance of the national long-term care insurance. Korean Journal of Social Welfare Research. 2013; 34(0):273–296.
11. Lee SY. Current issues regarding the elderly with dementia in the National Long-term Care Insurance. The Journal of Long Term Care. 2014; 2(2):53–76.
12. Baek JJ, Song MY. The study on conflicts and the strategies of conflicts mitigation among Alzheimer's special grade (5 grade) at day care center for elderly. Korean Journal of Care Management. 2015; 17:97–116.
13. National Health Insurance Service. Long term care insurance major statistics the first half year 2017. National Health Insurance Service Report. Wonju: National Health Insurance Service;2017. September. Report No.:11-B550928-00003809.
14. Lee KS, Lee HJ. A Study on the dementia special grade and on the local government's role for its development. Korean Journal of Gerontological Social Welfare. 2016; 71(2):165–194.
15. Son YS, Lee KS, Chung JW. A study on the intention to use community care service by pre-caregivers based on dementia under the long-term care insurance system for the aged-special dementia rating (5 rates) in the focus. Journal of Korean Clinical Health Science. 2016; 4(3):603–614. https://doi.org/10.15205/kschs.2016.9.30.603.
16. Kim DH, Um KW. A study on care experience of family members of the elderly with dementia after policy implementation of dementia special rating: Focusing on difficulty of care and necessary social services. Korean Journal of Gerontological Social Welfare. 2015; 70:349–371.
17. Ritche J, Lewis J, Nicholls C, Ormston R. Qualitative research practice. 2nd ed. London: Sage;2014. p. 430.
18. Seomun JH, Jung YJ. A qualitative study on caregivers' burden experiences for the long-term care qualified elderly. Journal of Institute for Social Sciences (Institute of Social Sciences Chungnam National University). 2011; 22(4):3–30.
19. Schur D, Whitlatch CJ, Clark PA. Beyond the chi-square: Care-givers are more than just faceless statistics. Lippincotts Case Management. 2005; 10(2):65–71. https://doi.org/10.1097/00129234-200503000-00002.
20. Han SJ, Lee S, Kim JY, Kim H. Factors associated with family caregiver burden for patients with dementia: a literature review. Journal of Korean Gerontological Nursing. 2014; 16(3):242–254. https://doi.org/10.17079/jkgn.2014.16.3.242.
21. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today. 2004; 24(2):105–112. https://doi.org/10.1016/j.nedt.2003.10.001.
22. Vaismoradi M, Turunen H, Bondas T. Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing & Health Sciences. 2013; 15(3):398–405. https://doi.org/10.1111/nhs.12048.
23. Yoo KS. A study of care burden of family caregivers for senile dementia. Journal of Korean Public Health Nursing. 2001; 15(1):125–147.
24. Kim HS, Koo JK, Son YM. A study on the burden of family caregivers of early-dementia who are using the daycare program for rating out of long-term care insurance. Korean Journal of Gerontological Social Welfare. 2014; 66:167–188.
25. Cho EY, Cho EH, Kim SS. Effects of family relationship on burden of family caregivers of older adult with dementia. Journal of the Korean Gerontological Society. 2010; 30(2):421–437.
26. Lee HJ. Park KA. A comparative study of caregiver experience for the demented elderly by the use of daycare centers. Korean Journal of Family Welfare. 2007; 12(2):45–66.
27. Kwon SY, Lee HJ, Lee JY. The effects of care hours on family caregiver's burden for the elderly with dementia: Focusing on the moderating effects of the attachment. Social Science Research Review. 2015; 31(2):317–337. https://doi.org/10.18859/ssrr.2015.05.31.2.317.
28. Song MR, Lee YM, Cheon SH. An analysis of the meaning of respite for family caregivers of elderly with dementia. Journal of Korean Academy of Nursing. 2010; 40(4):482–492. https://doi.org/10.4040/jkan.2010.40.4.482.
29. Lee Y, Park M. Factors influencing caregiving satisfaction among family caregivers of patients with dementia. Journal of Korean Gerontological Nursing. 2016; 18(3):117–127. https://doi.org/10.17079/jkgn.2016.18.3.117.
30. National Health Insurance Service. Judgement rating for long term care insurance [Internet]. Wonju: National Health Insurance Service;2017. [cited 2018 January 20]. Avaliable from:. http://www.longtermcare.or.kr/npbs/e/e/100/htmlView?pgmId=npee301m02s&desc=JudgmentRatingforLong-TermCareinsurance.
Table 1.
General Characteristics of the Family Caregivers and their Elderly People (N=11)
|
Family caregivers |
Elderly people |
|||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| P | Age | Gender (M or F) | Relation with the elderly | Marital status | Education | Job (Y or N) | Duration of care-giving (year) | Age | Gender (M or F) | Duration of care service† (months) |
| A | 49 | M | Son | Married | Bachelor's degree | Y | 5 | 71 | M | 10 |
| B | 60 | F | Daughter | Married | Elementary school | Y | 2 | 86 | F | 3 |
| graduate | ||||||||||
| C | 41 | F | Daughter | Married | Bachelor's degree | Y | 3 | 70 | F | 11 |
| D | 78 | F | Spouse | Married | Middle school | N | 6 | 80 | M | 13 |
| graduate | ||||||||||
| E | 46 | F | Daughter-in-law | Married | Master's degree | Y | 2.5 | 76 | F | 4 |
| F | 62 | F | Daughter | Married | Elementary school | Y | 2 | 88 | F | 7 |
| graduate | ||||||||||
| G | 55 | F | Daughter | Married | Middle school | Y | 3 | 86 | F | 13 |
| graduate | ||||||||||
| H | 54 | F | Daughter-in-law | Married | High school | N | 3 | 89 | F | 14 |
| graduate | ||||||||||
| I | 62 | F | Daughter-in-law | Married | Elementary school | Y | 2 | 82 | F | 12 |
| graduate | ||||||||||
| J | 78 | F | Spouse | Married | Elementary school | N | 3 | 78 | M | 6 |
| graduate | ||||||||||
| K | 68 | F | Daughter | Married | Elementary school | Y | 3 | 88 | F | 18 |
| graduate | ||||||||||
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