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Kim, Kim, and Lee: Lived Experiences of Elderly Living Alone with Parkinson Disease
Original Article

Korean J Adult Nurs 2018;30(4):394-403.

Published online: 21 August 2018

DOI: https://doi.org/10.7475/kjan.2018.30.4.394

Lived Experiences of Elderly Living Alone with Parkinson Disease

Yang Sin Kim1, Hee Kyung Kim2, , Yangsook Lee2

1Assistant Professor, Department of Nursing, Daejeon Institute of Science and Technology, Daejeon, Korea

2Professor, Department of Nursing, Kongju National University, Gongju, Korea

Corresponding author: Kim, Hee Kyung https://orcid.org/0000-0003-2103-4835 Department of Nursing, Kongju National University, 56 Gongjudaehak-ro, Gongju 32588, Korea. Tel: +82-41-850-0304, Fax: +82-41-850-0315, E-mail: hkkim@kongju.ac.kr

Received 31 May 201829 June 2018       Accepted 19 July 2018

Copyright © 2018 Korean Society of Adult Nursing

This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Purpose

The purpose of this study was to explore in depth the essential structure and meaning of disease experience for the elderly living alone with Parkinson disease, and provide basic data and grounds for national and social support measures and nursing intervention development for them.

Methods

In this study, van Manen's hermeneu-tic phenomenological methodology was applied, and data were collected from April to September 2015. Participants were 12 elderly people aged over 65 who live alone in Chungcheongnam-do and Daejeon Metropolitan City and have Parkinson disease. Data were collected until saturation through in-depth interviews and participant observations.

Results

Through analysis of the experience of participants of this study, 7 essential themes and 18 investigated themes were derived in the 4 existing bodies of world of life that they experienced. “ Can’ t accept the disease that came after a hard life”, “ Catch the hopes”, “ Feel painful body and soul because my body does not move at will”, “ Want life and death without pain anymore”, “ Don’ t want to reveal my disease to others”, “ Look for something to rely on and to feel secure”, and “ Want to return the helps that I received from others” were derived.

Conclusion

It is suggested that nursing providers must provide individualized nursing intervention, which the elderly living alone with Parkinson disease truly need, through deep sympathy for their disease experience.

Keywords: Elderly, Lived experiences, Parkinson disease

REFERENCES

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Table 1.
Sociodemographic Characteristics of the Participants
No Gender Age (year) Education A period of living alone (year) Duration of parkinson disease (year) Parkinson disease rating scale (grade) Activity level of daily living (score)
1 Women 84 Elementary school 2 8 2 38
2 Women 69 Elementary school 15 10 3 27
3 Women 67 None 15 10 3 36
4 Women 83 Middle school 3 3 1.5 40
5 Women 84 None 1 5 1.5 27
6 Women 78 None 15 3 2 38
7 Men 74 University 14 3 1.5 38
8 Women 82 None 2 5 1 38
9 Women 81 None 20 5 4 15
10 Women 79 None 3 10 5 13
11 Women 69 Middle school 1 1 1.5 38
12 Women 84 Elementary school 23 5 2.5 33
Table 2.
Themes of the Lived Experience of Elderly with Parkinson Disease Living Alone
Four lived worlds Themes Sub-themes
Lived time (temporality) Can't accept the disease that came after a hard life Didn't recognize my disease due to a hard life
Hardly believed the fact that I contract a disease
Catch the hopes Trying to change my mind about the situation only
Make an effort to live alone independently
Never give up but depend on treatment
Want to work again upon recovery of health
Lived body (corporality) Feel painful body and soul because my body does not move at will Feel pain in my body that does not move at will
Have difficulties in living ill
Sad due to the disease
Lived space (spatiality) Want life and death without pain anymore Afraid of being sent to the facility
Afraid of living forever with the help from others
Afraid of dying alone in agony
Lived relation (relationality) Don't want to reveal my disease to others Feel sad due to my disease that I can't confide to my children
Annoyed to see myself intimidated by other people's eyes
Look for something to rely on and to feel secure Wait for someone due to loneliness
Look for something to rely on
Want to return the helps that I received from others Appreciate the assistance I received
Want to help others
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