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Abstract
Purpose
The purpose of this study is to provide the basic data to develop the effective nursing intervention for the parent who have children with cancer by acquiring the deeper understanding of the mothers' adjustment of caring for their children with cancer.
Methods
The ethnographic research method was used to find out the pattern of caring adjustment in Korean cultural context. Informants consisted of 12 mothers who were caring for their children with cancer. The data were collected using in-depth interviews, participant observation, and telephone interviews by maximum variation purposive sampling. The data were analyzed following Spradley's methodology.
Results
The mothers' caring adjustment were organized into one cultural theme, four categories, and twelve properties. The cultural theme was 'standing alone as a mother with sin'. The four categories were 'blaming for falling illness', 'overcoming with motherhood', 'desperate struggling with side effects', and 'establishing new network as a dependent'.
Conclusion
For the mothers who are caring children with cancer, the supportive nursing intervention based on the deeper understanding of mothers' pattern of caring adjustment for their children and centered on facilitating effective adjustment in each cultural context especially from the very early stage of caring in the hospital ward is extremely required.
Figures and Tables
Table 1
Cultural Theme, Categories, and Properties
Summary Statement
▪ What is already known about this topic?
Many studies have found that mothers caring for their children with cancer have experienced high stresses in the process of caring adjustment.
▪ What this paper adds?
This paper shows the pattern of caring adjustment to mothers' role caring children with cancer with overcoming the caring difficulties with the power inherent to motherhood while they suffer with a series of painful process related to mother role in the early stage of the caring in Korean society, which reflects strong confucianism culture.
▪ Implications for practice, education and/or policy
Nursing intervention, such as parent education program and its institutional support, facilitating adjustment and coping to their caring role for children with cancer is desperately necessary in the hospital ward from the beginning stage of the caring.
References
1. Health Insurance Review & Assessment Service. 152.1% increase in medical expenses for children with cancer in recent 5 years [Internet]. Seoul: Health Insurance Review & Assessment Service;2011. cited 2014 October 29. Available from: http://www.hira.or.kr/dummy.do?pgmid=HIRAA020041000000&cmsurl=/cms/notice/02/1203925_24959.
2. Lackner H, Benesch M, Schagerl S, Kerbl R, Schwinger W, Urban C. Prospective evaluation of late effects after childhood cancer therapy with a follow-up over 9 years. Eur J Pediatr. 2000; 159(10):750–758.
3. Rodriguez EM, Dunn MJ, Zuckerman T, Vannatta K, Gerhardt CA. Cancer-related sources of stress for children with cancer and their parents. J Pediatr Psychol. 2011; 37(2):185–197.
4. Young B, Dixon-Woods M, Findlay M, Heney D. Parenting in a crisis: Conceptualising mothers of children with cancer. Soc Sci Med. 2002; 55(10):1835–1847.
5. Son SY. A study on maternal role image of Korean women in TV commercial ads. [dissertation]. Seoul, Korea: Hongik University;2013. 1–217.
6. Kim SY, Kim SM, Lee GY. A Qualitative study on dual earner families' work and family lives for ideal work-family balance. Korea Fam Resour Manage Assoc. 2011; 15(1):93–116.
7. Park IS. Relationships of family value, family hardiness and family adaptation in family who has a child with Cancer. Korean J Child Health Nurs. 2001; 7(2):179–190.
8. Luk YC. Evidence-based psychosocial interventions for families with childhood cancer patients [dissertation]. Hong Kong: The University of HongKong;2010. 1–117.
9. Jeon HW, Chang YJ. Hermeneutic phenomenological understanding on psychological experience about a mother's caring for her child suffering from pediatric cancer. Qual Res. 2002; 3(2):16–34.
10. Penner LA, Harper WK, Albrecht TL. The role of empathic emotions in caregiving: Caring for pediatric cancer patients. In : Brown SL, Michael Brown R, Penner LA, editors. Moving Beyond Self-Interest: Perspectives from Evolutionary Biology, Neuroscience, and the Social Sciences. Oxford Scholarship Online;2011. p. 167–177.
11. Hutchinson KC, Willard VW, Hardy KK, Bonner MJ. Adjustment of caregivers of pediatric patients with brain tumors: across-sectional analysis. Psychooncology. 2009; 18(5):515–523.
12. Dolgin MJ, Phipps S, Fairclough DL, Sahler OJ, Askins M, Noll RB, et al. Trajectories of adjustment in mothers of children with newly diagnosed cancer: a natural history investigation. J Pediatr Psychol. 2007; 32(7):771–782.
13. Song JY, Lee HK. The mediating effect of life meaning of childhood cancer patients mothers in the link between their hope and posttraumatic growth. Korean J Couns. 2010; 11(4):1501–1517.
14. Kazak AE. Evidence-based interventions for survivors of childhood cancer and their families. J Pediatr Psychol. 2005; 30(1):29–39.
15. Yoo EK. Ethnography and ethnographic research method. In : Kim KB, editor. Qualitative research methodology. Seoul: Hyunmoonsa;2005. p. 223–272.
16. Choi YH. Qualitative nursing research. Seoul: Soomoonsa;1993. p. 136.
17. Cho HH, Yoon JW. Trends in research on children with cancer and their families in Korea. J Korean Acad Child Health Nurs. 2010; 16(1):73–83.
18. Ko YS. Phenomenological study on psychological experiences of parents with pediatric cancer [dissertation]. Cheonan, Korea: Baekseok University;2008. 1–165.
19. Kang KA, Kim SJ. The difficulties for parents of children with terminal cancer. Korean J Child Health Nurs. 2005; 11(2):229–239.
20. Spradley JP.
JY Shin
. Participant observation. Seoul: Cengage Learning;2009.
21. Sandelowski M. The problem of rigor in qualitative research. ANS Adv Nurs Sci. 1986; 8:27–37.
22. James CA, Hadley DW, Holtzman NA, Winkelstein JA. How does the mode of inheritance of a genetic condition influence families? A study of guilt, blame, stigma, and understanding of inheritance and reproductive risks in families with X-linked and autosomal recessive diseases. Genet Med. 2006; 8(4):234–242.
23. Park HS, Kim KB. The experience of parents of children with mucopolysaccharidosis. Qual Res. 2013; 14(1):1–12.
24. Johns AL, Oland AA, Katz ER, Sahler OJZ, Askins MA, Butler RW, et al. Qualitative analysis of the role of culture in coping themes of Latin and European-American mothers of children with cancer. J Pediatr Oncol Nurs. 2009; 26(3):167–175.
25. Shortman RI, Beringer A, Penn A, Malson H, Lowis SP, Sharples PM. The experience of mothers caring for a child with a brain tumor. Child Care Health Dev. 2013; 39(5):743–749.
26. Penn A, Lowis SP, Stevens MC, Hunt LP, Shortman RI, McCarter RJ, et al. Family demographic and illness-related determinants of HRQL in children with brain tumours in the first year after diagnosis. Pediatr Blood Cancer. 2009; 53:1092–1099.
27. Kim BH. A Study on the attribution theory and the Tat. New Med J. 1990; 33(1):144–152.
28. An HS. Neoplastic diseases and tumors. In : An HS, editor. Hong Changeui Pediatrics. 10th ed. Seoul: Mirae-N;2012. p. 814–873.
29. Rishel CJ. Succession planning in oncology nursing: a professional must-have. Oncol Nurs Forum. 2013; 40(2):114–115.
30. Moules NJ, McCaffrey G, Laing CM, Tapp DM, Strother D. Grandparents experiences of childhood cancer, part 2: the need for support. J Pediatr Oncol Nurs. 2012; 29(3):133–140.
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