Nursing Needs and Burden of Family Caregivers of Middle-Aged Hepatocellular Carcinoma Patients

Yu Jin Lee; Hyunwook Kang

doi:10.5388/aon.2014.14.4.227

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Lee and Kang: Nursing Needs and Burden of Family Caregivers of Middle-Aged Hepatocellular Carcinoma Patients

Original Article

Asian Oncology Nursing 2014; 14(4): 227-235.

Published online: 31 December 2014

DOI: https://doi.org/10.5388/aon.2014.14.4.227

Nursing Needs and Burden of Family Caregivers of Middle-Aged Hepatocellular Carcinoma Patients

Yu Jin Lee¹, Hyunwook Kang²

¹Cancer Center, Keimyung University Dongsan Medical Center, Daegu, Korea.

²Department of Nursing, Chung-Ang University, Seoul, Korea.

Address reprint requests to: Kang, Hyunwook. Department of Nursing, Chung-Ang University, 84 Heukseok-ro, Dongjak-gu, Seoul 156-756, Korea. Tel: +82-2-820-5993, Fax: +82-2-824-7961, hwkang99@cau.ac.kr

Received 10 October 2014 Accepted 17 December 2014

(open-access):

This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Purpose

The purpose of this study was to identify nursing needs and burden of family caregivers of middle-aged patients with hepatocellular carcinoma.

Methods

The participants of this study were 101 family caregivers from 3 university hospitals in D city, South Korea. The levels of nursing needs and burden of family caregivers were measured using structured questionnaires from August 1, 2011 to February 29, 2012. The collected data were analyzed using t-tests, ANOVA, Scheffé tests, and Pearson's correlation coefficients.

Results

The greatest nursing need was for information about patients' health status. Among subdomains of burden, financial burden had the greatest mean score. Family caregivers with worsened health status since starting caregiving had significantly higher levels of total nursing needs and total burden. Total burden and physical burden scores showed significant correlations with all subdomains of nursing needs as well as total nursing need scores.

Conclusion

Findings of this study suggest that family caregivers of middle-aged patients with hepatocellular carcinoma need provision of information about patients' health status and treatment plans, and financial support the most. Also maintaining family caregivers' health needs to be considered when providing nursing intervention for patients with hepatocellular carcinoma and their family caregivers.

Keywords: Liver Neoplasms, Caregivers, Burden of Illness, Needs Assessment

Figures and Tables

Table 1

General Characteristics of Family Caregivers (N=101)

Table 2

Levels of Nursing Needs and Burden (N=101)

Table 3

Levels of Nursing Needs according to General Characteristics (N=101)

Inform.= Information; IN= Internal need; EN= External needs; SS= Spiritual support; ES= Emotional support; Role guide; (-)= non-significant. A= 50% Working hrs; B= Working hrs and disabled; Pt= Patients.

Table 4

Levels of Burden according to General Characteristics (N=101)

DB= Dependent burden; SB= Social burden; FB= Financial burden; PB= Physical burden; EB= Emotional burden; (-)= non-significant. A= 50% Working hrs; B= Working hrs and disabled; Pt= Patients.

Table 5

Correlations between Nursing Needs and Burden

Notes

This article is a revision of the first author's master's thesis from Keimyung University.

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