Abstract
Purpose
The aims of this study were to identify the reported attitudes of older patients with cancer toward advance directives (ADs) and the factors associated with their attitudes toward ADs.
Methods
The design was a cross-sectional survey. The age mean of the 130 participants were 70.8, and 66.2% of the participants were male. The data were collected at one university hospital in Seoul, South Korea during the period from October 1st to December 5th in 2013. The data collecting instruments were the Advance Directives Attitude Survey (ADAS) and questionnaires including socio-demographic and disease-related characteristics, family function.
Results
30.0% of the participants were aware of ADs, only 9% of them had been informed by healthcare providers. Most participants (93.1%) intended to complete ADs. The mean score of ADAS was 48.29. The stepwise linear regression analysis indicated that family function, perceived health status, period of education, and age accounted for a significant percentage (52.0%, p<.001) of the variance in participants’ ADAS. The variable with the greatest effect was family function.
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Table 1.
Characteristics | Categories | n (%) or M±SD |
---|---|---|
Gender | Male | 86 (66.2) |
Female | 44 (33.8) | |
Age (year) | 70.75±5.09 | |
65~74 | 98 (75.4) | |
≥75 | 32 (24.6) | |
Spouse | Having | 114 (87.7) |
Not having | 16 (12.3) | |
Level of education | None | 10 (7.8) |
Elementary school | 18 (13.8) | |
Middle school | 23 (17.7) | |
High school | 38 (29.2) | |
University | 41 (31.5) | |
Religion | Yes | 97 (74.6) |
No | 33 (25.4) | |
Living with | Alone | 14 (10.8) |
Spouse | 71 (54.6) | |
Spouse & children | 35 (26.9) | |
Children | 6 (4.6) | |
Others | 4 (3.1) | |
Medical expenses payment | Self | 73 (56.2) |
Children | 32 (24.6) | |
Self + Children | 25 (19.2) | |
Cancer site | HPB | 98 (75.4) |
Gastroenteric | 21 (16.1) | |
Urinary | 11 (8.5) | |
Period since cancer diagnosis (month) | 48.36±55.40 | |
0~11 | 35 (27.0) | |
12~35 | 32 (24.6) | |
36~59 | 18 (13.8) | |
60~83 | 19 (14.6) | |
≥84 | 26 (20.0) | |
Period of medical treatment (month) | 46.96±54.43 | |
0~11 | 36 (27.7) | |
12~35 | 32 (24.6) | |
36~59 | 17 (13.1) | |
60~83 | 20 (15.4) | |
≥84 | 25 (19.2) | |
Perceived health status | 6.18±1.78 | |
0~3 | 7 (5.4) | |
4~7 | 98 (75.4) | |
8~10 | 25 (19.2) | |
Listen about ADs | Yes | 43 (33.1) |
No | 87 (66.9) | |
Route of informed about ADs (N=43) | Healthcare provider | 4 (9.0) |
Broadcast media | 27 (61.4) | |
Surrounding people | 8 (18.2) | |
Others | 5 (11.4) | |
Awareness of ADs | Yes | 39 (30.0) |
No | 91 (70.0) | |
Intention to ADs | Yes | 121 (93.1) |
No | 9 (6.9) | |
Preferred type of decision about ADs | Make one's own decision | 24 (18.5) |
Discuss with family | 81 (62.3) | |
Discuss with family when | 25 (19.2) | |
necessary | ||
Family member to discuss about ADs† | Spouse | 61 (44.5) |
Children | 35 (25.5) | |
Brother and Sister All family | 1 (0.8) 38 (27.7) | |
Others | 2 (1.5) |
Table 2.
Variables | Items | M±SD |
---|---|---|
Attitude toward ADs | Having an ADs would make my family feel left out of caring for me. | 3.32±0.56 |
It is better to make an advance directive when you are healthy. | 3.32±0.58 | |
Having an ADs would make sure that my family knows my treatment wishes. | 3.30±0.55 | |
Making my end of life treatment wishes clear with an ADs would keep my family from disagreeing over what to do if I were very sick and unable to decide for myself. | 3.19±0.64 | |
Having an ADs would make sure that I get the treatment at the end of my life that I do want. | 3.18±0.61 | |
If I could not make decisions, my family would be given choices about the treatment I would receive. | 3.17±0.64 | |
Having an ADs would prevent costly medical exposures for my family. | 3.15±0.65 | |
I trust one of my family or friends to make treatment decisions for me if I cannot make them myself. | 3.13±0.66 | |
Making my end of life treatment wishes clear with an ADs would help to prevent guilt in my family. | 3.12±0.70 | |
My doctor would include my concerns in decisions about my treatment at the end of life. | 3.08±0.70 | |
I am not sick enough to have an ADs.† | 2.97±0.74 | |
I would be given choices about the treatment I would receive at the end of my life. | 2.96±0.71 | |
I think my family would want me to have an ADs. | 2.69±0.85 | |
My family wants me to have an ADs. | 2.64±0.79 | |
Making my end of life treatment wishes clear with an ADs would have no impact on my family.† | 2.60±0.84 | |
I have choices about the treatment I would receive at the end of my life. | 2.48±0.95 | |
Total Mean | 3.02±0.75 | |
Total Sum | 48.29±5.57 | |
Family function | Cohesion | 39.36±6.84 |
Adaptability | 36.15±5.74 | |
Total Sum | 75.51±11.13 |
Table 3.
Characteristics | Categories† | M±SD | t or F | p |
---|---|---|---|---|
Gender | Male | 48.52±5.31 | 0.66 | .511 |
Female | 47.84±6.08 | |||
Age (year) | 65~74 | 49.47±5.29 | 4.52 | <.001 |
≥75 | 44.69±4.86 | |||
Spouse | Having | 48.09±5.38 | -1.12 | .265 |
Not having | 49.75±6.82 | |||
Level of education | Nonea | 41.70±4.92 | 9.45 | <.001 |
Elementary schoola,b | 45.56±5.14 | a<b<c | ||
Middle schoolb,c | 48.39±4.77 | |||
High schoolb,c | 48.08±4.34 | |||
Universityc | 51.24±5.50 | |||
Religion | Yes | 48.37±5.72 | 0.28 | .783 |
No | 48.06±5.19 | |||
Living with | Alone | 46.86±5.35 | 2.16 | .078 |
Spouse | 48.69±5.57 | |||
Spouse&Children | 47.63±4.61 | |||
Children | 46.33±7.34 | |||
Others | 55.00±8.37 | |||
Medical expenses payment | Selfa | 49.29±5.34 | 5.77 a>b | .004 |
Childrenb | 45.50±5.39 | |||
Self + Childrena | 48.96±5.47 | |||
Cancer site | HPB | 48.77±5.92 | 1.52 | .222 |
Gastroenteric | 46.57±4.59 | |||
Urinary | 47.36±3.04 | |||
Period since cancer diagnosis | 0~11 | 47.40±4.68 | 2.04 | .093 |
12~35 | 46.69±5.49 | |||
36~59 | 49.83±5.32 | |||
60~83 | 48.63±5.16 | |||
≥84 | 50.15±6.69 | |||
Period of medical treatment | 0~11 | 47.47±4.63 | 1.53 | .198 |
12~35 | 46.88±5.70 | |||
36~59 | 49.47±5.25 | |||
60~83 | 49.05±5.36 | |||
≥84 | 49.88±6.68 | |||
Perceived health status | 0~3a | 39.29±3.40 | 16.66 | <.001 |
4~7b | 48.11±5.10 | a<b | ||
8~10b | 51.52±4.93 | |||
Listen about ADs | Yes | 47.95±4.73 | 0.53 | .600 |
No | 48.46±5.96 | |||
Route of informed about ADs | Healthcare provider | 50.75±6.50 | 0.56 | .725 |
Broadcast media | 47.19±4.53 | |||
Surrounding people | 49.13±5.57 | |||
Others | 47.80±2.49 | |||
Awareness of ADs | Yes | 48.49±4.50 | -0.29 | .771 |
No | 48.21±5.60 | |||
Intention to ADs | Yes | 48.40±5.65 | 0.85 | .400 |
No | 46.78±4.27 | |||
Preferred type of decision about ADs | Make one's own decision | 49.43±41.71 | 1.21 | .300 |
DWF | 48.21±26.90 | |||
DWF when necessary | 46.92±33.21 |
Table 4.
X1=attitude toward advance directives; X2=family function; X3=cohesion; X4=adaptability; X5=age; X6=period of education; X7=perceived health status; X8=no. of living together family; X9=period since cancer diagnosis; X10=period since informed about illness; X11=period of medical; ADs=Advance Directives;
Table 5.
Variables | B† | SE | β | R2 | t | p |
---|---|---|---|---|---|---|
(Constant) | 39.69 | 5.98 | 6.64 | <.001 | ||
Family function (FACE III) | 0.20 | 0.04 | .39 | .39 | 5.30 | <.001 |
Perceived health status | 0.78 | 0.23 | .25 | .46 | 3.41 | .001 |
Period of education (year) | 0.24 | 0.09 | .18 | .50 | 0.18 | .010 |
Age (year) | -0.20 | 0.07 | -.18 | .53 | -2.80 | .006 |
R2=.53, Adjusted R2=.52, F=35.29, p<.001 |