Abstract
Purpose
The aimof this phenomenological study was to qualitatively classify the experience of spouses caring for patients with schizophrenia.
Methods
Data were gathered using 2 hour in-depth, unstructured interviews with nine spouses of patients with schizophrenia. The data collection period was 2012 to 2013. Colaizzi's phenomenological method was used to analyze the resulting data.
Results
Five clusters of themes were identified. These were termed according to the experiences described by the spouses, as: suffering fromfalling into the abyss of despair; deepening heartbreak, clouds of misery hanging over one's family; possibly of losing the bond between familymembers; getting over one's hurt and stepping forward to the future. Participants experienced many burdens while caring for their spouse, however, they showed the ability to overcome difficulties positively and actively.
Conclusion
The results of this study indicate that the spouse of a patient with schizophrenia experiences multiple sources of distress, and suggests a process to overcoming them. Recommendations include helping nurses be aware of the sufferings of both the patient and the spouse and to plan and provide for psychological interventions, such as stressmanagement programs and informational support on social welfare programs.
References
1. Hwang TY, Kim JH, Han ES, Lee CS. The effect of the vocational rehabilitation program on the quality of life of the chronic schizophrenics. J Korean Neuropsychiatr Assoc. 1998; 37(6):1087–1098.
2. Statistics Korea. The epidemiological survey of mental disorders in Korea [Internet]. 2011. cited 2015November 10. Available from: http://www.index.go.kr/com/cmm/fms/FileDown.do;jsessionid=PMQfaFbcwwSFRjCkmaFmXmb1Oz4WtOBfjxpkDbZl4kEzvE2k2LAS2KYwql8kQax4.wasgams1_servlet_engine1?apnd_file_id=1441&apnd_file_seq=5.
3. Kim SH, Lee YH, Hwang JH, Oh MA, Lee MK, Lee NH, et al. 2014 The disability survey. Policy Report. Seoul, Korea: Korea Institute for Health and Social Affairs;2014. December. Report No. Policy Report 2014-73.
4. Jeon HS. Influencing factors on stress of caregiverswith spouses having amental illness-focused on the biopsychosocial perspectives. Korean J Fam Soc Work. 2011; 33:349–373. DOI: 10.16975/kjfsw.2011..33.012.
5. Koh MH. Experiences of hope in clients with chronic schizophrenia. J Korean Acad Nurs. 2005; 35(3):555–564.
6. Shin SI. Causality between spouse attitude and relapse of the psychiatrically disordered. Korean J Soc Welf. 2008; 60(3):59–82.
7. Moon SY. A research on psychiatric patients' marriage lives [master's thesis]. Seoul: Ewha Womans University;2002. 1–116.
8. Wittmund B, Wilms HU, Mory C, Angermeyer MC. Depressive disorders in spouses of mentally ill patients. Soc Psychiatry Psychiatr Epidemiol. 2002; 37(4):177–182. DOI: 10.1007/s001270200012.
9. Jungbauer J, Bischkopf J, Angermeyer MC. The illness has totally changed our lives-stress in partners of schizophrenic patients at the onset of illness. Psychiatr Prax. 2001; 28(3):133–138.
10. Jeon HS. A study on the stress of spouse of mentally disabled andmarital adjustment: focused on themediation effect of coherence sense. Health Soc Welf Rev. 2010; 30(2):134–163. DOI: 10.15709/hswr.2010.30.2.134.
11. Kim CK, Kim JW, Seo JM, Lee GJ, Kim GJ, Byun WT. Family burden of schizophrenics in the primary caregivers and siblings. J Korean Neuropsychiatr Assoc. 2000; 39(1):113–127.
12. Choi HG. The subjective burden of family caregiverswith schizophrenics and its predictors. Korean J Soc Welf. 2001; 45(45):374–399.
13. Oh IO, Kim S. Structural equationmodel for caregiving experience of families providing care for familymemberswithmental disorders. J Korean Acad Nurs. 2015; 45(1):97–106. DOI: 10.4040/jkan.2015.45.1.97.
14. Kim YS. Factors influencing to the caregiving satisfaction of mothers of a person with mental disorder. Korean J Soc Welf. 2006; 58(3):371–398.
15. Kim YH, Byunk EK, Jeon YH, Kim YH. Experiences of parents who take care of a schizophrenic children. Qual Res. 2004; 5(2):75–89.
16. Yi M, Choe MA, Hah YS, Kim KS, Yih BS, Kim J. Mothers' experience of caregiving for their children with schizophrenia. J Korean Acad Nurs. 2006; 36(1):45–54.
17. Lee JS. The Study of the Experience of families with chronic psychiatric patients. J Korean Acad Psychiatr Ment Health Nurs. 1998; 7(2):245–256.
18. Grandoón P, Jenaro C, Lemos S. Primary caregivers of schizophrenia outpatients: burden and predictor variables. Psychiatry Res. 2008; 158(3):335–343. DOI: 10.1016/j.psychres.2006.12.013.
19. Kate N, Grover S, Kulhara P, Nehra R. Relationship of caregiver burden with coping strategies, social support, psychological morbidity, and quality of life in the caregivers of schizophrenia. Asian J Psychiatr. 2013; 6(5):380–388. DOI: 10.1016/j.ajp.2013.03.014.
20. Mizuno E, Takataya K, Kamizawa N, Sakai I, Yamazaki Y. Female families' experiences of caring for persons with schizophrenia. Arch Psychiatr Nurs. 2013; 27(2):72–77. DOI: 10.1016/j.apnu.2012.10.007.
21. Ae-Ngibise KA, Doku VCK, Asante KP, Owusu-Agyei S. The experience of caregivers of people living with serious mental disorders: a study frm rural ghana. Glob Health Action. 2015; 8:26957. DOI: 10.3402/gha.v8.26957.
22. Mcauliffe R, O'Connor L, Meagher D. Parents' experience of livingwith and caring for an adult son or daughterwith schizophrenia at home in Ireland: a qualitative study. J Psychiatr Ment Health Nurs. 2013; 21(2):145–153. DOI: 10.1111/jpm.12065.
23. Mizuno E, Iwasaki M, Sakai I. Subjective experiences of husbands of spouses with schizophrenia: an analysis of the husbands' descriptions of their experiences. Arch Psychiatr Nurs. 2011; 25(5):366–375. DOI: 10.1016/j.apnu.2011.03.001.
24. Hong SH. A phenomenological study of the caring in nursing science. Res Philos Phenomenol. 2011; 9(50):213–241.
25. Colaizzi PF. Psychological research as the phenomenologist views it. In : Valle R, King M, editors. Existential-phenomenological alternatives for Psychology. New York: Oxford University Press;1978. p. 48–71.
26. Guba EG, Lincoln YS. Effective evaluation: improving the usefulness of evaluation result through responsive and naturalistic approaches. San Francisco, CA: Jossey-Bass Publication;1981. p. 423.
27. Bae JI. The experience of families with psychiatric patients: a grounded theory approach. J Korean Acad Psychiatr Ment Health Nurs. 2001; 10(1):53–65.
28. Mutch K. In sickness and in health: experience of caring for a spouse with MS. Br J Nurs. 2010; 19(4):214–219. DOI: 10.12968/bjon.2010.19.4.46782.