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Yang: Life Experiences of Korean Patients with Hansen's Disease in Sorok Island Hospital
Original Article

Journal of Korean Academy of Nursing 2014; 44(6): 639-648.

Published online: 31 December 2014

DOI: https://doi.org/10.4040/jkan.2014.44.6.639

Life Experiences of Korean Patients with Hansen's Disease in Sorok Island Hospital

Ya Ki Yang

Department of Nursing, Wonkwang University, Iksan, Korea.

Address reprint requests to: Yang, Ya Ki. Department of Nursing, Wonkwang University, 460 Iksan-daero, Iksan 570-749, Korea. Tel: +82-63-850-6019, Fax: +82-63-850-6060, ykyang@wku.ac.kr

Received 5 August 2014       Revised 21 August 2014       Accepted 2 October 2014

© 2014 Korean Society of Nursing Science

(open-access):

This is an Open Access article distributed under the terms of the Creative Commons Attribution NoDerivs License. (http://creativecommons.org/licenses/by-nd/4.0/) If the original work is properly cited and retained without any modification or reproduction, it can be used and re-distributed in any format and medium.

Abstract

Purpose

The purpose of this study was to identify life experiences of Korean patients with Hansen's disease (leprosy).

Methods

For this study, 5 participants from Sorok Island Hospital were purposively chosen. Data were collected through in-depth individual interviews from June to July 2014. Data analysis method was based on Colaizzi's approach.

Results

The study results showed that experiences of patients with Hansen's disease consisted of 14 themes and six theme clusters: 1) Bad disease approaching as fate; 2) Family breakup and far from the village; 3) New life in Sorok Island Hospital; 4) Treatment of Hansen's disease and disability; 5) Life in the disease community; 6) Comfort and hope of life.

Conclusion

The findings of this study indicate that health care professionals should pay attention to patients with Hansen's disease not only to reduce their physical and psychological suffering, but also to help the community and public culture to reduce the social stigma surrounding this disease and causing suffering for the patients. The results of the present study can help us to have a better understanding of various aspects of patients' lived experiences.

Keywords: Hansen's disease, Leprosy, Life experiences, Infection, Phenomenography

Figures and Tables

Table 1
Life Experiences of Patients with Hansen's Disease
jkan-44-639-i001

Notes

This study was supported by the Research Grant of the Korean Society of Nursing Science in 2012.

References

1. Chae GT. Review of history of institute of Hansen's disease in the Catholic Medical College: (1961.4.1-2011.4.1). Seoul: Institute of Hansen's Disease;2011.
2. Jung KS. Dissolution of settlement village and network of migration in Hansen's disease ex-patient communities. Soc Hist. 2006; 69:43–81.
3. National Human Rights Commission of Korea. Survey on the human rights of Hansen's. Seoul: Author;2005.
4. Kim JH. The lived experience of leprosy patient [master's thesis]. Gwangju: Chosun University;2004.
5. Korean Hansen Welfare Association. Cases under of service in 2013 [Internet]. Uiwang: Author;2013. cited 2014 July 3. Available from: http://www.khwa.or.kr/sub.asp?maincode=482&sub_sequence=529&sub_sub_sequence=&strBoardID=kui_529&exec=VIEW&intPage=&intCategory=0&strSearchCategory=|s_name|s_subject|&strSearchWord=&intSeq=548.
6. Cross H, Choudhary R. STEP: An intervention to address the issue of stigma related to leprosy in Southern Nepal. Lepr Rev. 2005; 76(4):316–324.
7. Shin SY. Social distance towards people affected by Hansen' disease. Korean J Care Manag. 2012; 7:177–200.
8. Kim KH, Chung IY, Seo SW. The effect of augmented lateral tarsal strip for paralytic ectropion in leprosy patients. J Korean Ophthalmol Soc. 2009; 50(4):497–504. http://dx.doi.org/10.3341/jkos.2009.50.4.497.
9. Kim SS, Kang YS. A study on spirituality and death attitudes of terminal patients with Hansen's disease. Ment Health Soc Work. 2007; 25:41–73.
10. Choi BT. Son Yang-Won and leprosy relief activities centered around the Aeyangwon church. Christ Hist Korea. 2011; 34:191–215.
11. Jung KS. The start and change of the modern leprosy control in colonial Korea. Health Soc Sci. 1997; 1(1):1–30.
12. Jung KS. Historical development and social structure of disease community: A case of Iksan farm. J Modern Soc Sci. 1998; 9:157–191.
13. Joo YJ. Social works for the Hansen's disease patients in post-liberation Korea: Focusing on the works of Catholic organizations. Res Found Korean Church Hist. 2007; 29:221–252.
14. Park KD. Change of meaning in Sorok Island and actions taken in the Hansen community. Korean Reg Sociol. 2010; 11(2):91–130.
15. Kang TK. A study on the patients with Hansen's disease who experienced suicidal urge and overcame suicide [master's thesis]. Daegu: Daegu University;2013.
16. Colaizzi PF. Psychological research as the phenomenologist views it. New York, NY: Oxford University Press;1978.
17. Lee HK, Yang YH, Gu MO, Eun Y. Introduction of nursing research. 4th ed. Seoul: Hyunmoon;2009.
18. van Manen M. Writing qualitatively, or the demands of writing. Qual Health Res. 2006; 16(5):713–722. http://dx.doi.org/10.1177/1049732306286911.
19. Morse JM, Hutchinson SA, Penrod J. From theory to practice: The development of assessment guides from qualitatively derived theory. Qual Health Res. 1998; 8(3):329–340.
20. Heijnders ML. An exploration of the views of people with leprosy in Nepal concerning the quality of leprosy services and their impact on adherence behaviour. Lepr Rev. 2004; 75(4):338–347.
21. Yoo YS, Kim BR, Cho OH. Stigma, self-esteem and quality of life of people with Hansen's disease. J Muscle Joint Health. 2012; 19(3):272–281. http://dx.doi.org/10.5953/JMJH.2012.19.3.272.
22. Oh SK. A study on improvement of management skill for persons affected by leprosy living with their families in Seoul metropolitan area [master's thesis]. Cheonan: Dankook University;2009.
23. Cho YS. Depression, loneliness and coping in client with Hansen's disease. Korean Lepr Bull. 2009; 42(1):99–114.
24. Jung KS, editor. Another home, our landscape. Jeollanam-do: Sorokdo National Hospital;2011.
25. Chang SJ. Lived experiences of nursing home residents in Korea. Asian Nurs Res. 2013; 7(2):83–90.
26. Lee JS. A study on the moderating effects of social support in the relationship between the stigma and social avoidance & distress of individuals with leprosy. J Rehabil Res. 2011; 15(3):107–130.
27. Kim SL. Hansen's oral life histories and healing. Korean J Med Hist. 2013; 22(2):389–420.
28. Kim HY, Eom CH. Search for humanities therapy utilizing oral history: Memory, trauma and history therapy. Stud Humanit. 2010; 24:361–383.
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