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Lee and Kim: The Life of Adolescent Patients with Complex Congenital Heart Disease
Original Article
Journal of Korean Academy of Nursing

Journal of Korean Academy of Nursing 2010; 40(3): 411-422.

Published online: 30 June 2010

DOI: https://doi.org/10.4040/jkan.2010.40.3.411

The Life of Adolescent Patients with Complex Congenital Heart Disease

Sunhee Lee1, So-Sun Kim2

1Instructor, College of Nursing, Eulji University, Seongnam, Korea.

2Professor, College of Nursing · Researcher, The Nursing Policy Research Institute, Yonsei University, Seoul, Korea.

Address reprint requests to: Kim, So-Sun. College of Nursing, Yonsei University, 134 Sinchon-dong, Seodaemun-gu, Seoul 120-752, Korea. Tel: 82-2-2228-3254, Fax: 82-2-392-5440, soskim@yuhs.ac

Received 1 February 2010       Accepted 9 June 2010

Copyright © 2010 Korean Society of Nursing Science

Abstract

Purpose

In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea.

Methods

After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated.

Results

The results confirmed the life of adolescents with complex CHD as a 'journey to finding uniqueness of oneself as a person with CHD'. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life.

Conclusion

The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.

Keywords: Adolescent, Congenital heart defect, Grounded theory, Life

Figures and Tables

Figure 1
Paradigm of life of adolescent with complex congenital heart disease.
jkan-40-411-g001
Figure 2
Journey to finding uniqueness of oneself as a person with CHD.
jkan-40-411-g002
Table 1
Demographic Characteristics of the Participants
jkan-40-411-i001

TOF=Tetralogy of Fallot; PA=Pulmonary atresia; CHF=Congestive heart failure; DORV=Double outlet right ventricle; VSD=Ventriclular septal defect; PS=Pulmonary stenosis; TGA=Transposition of the great arteries; PDA=Patent ductus arteiosus; Pul. HTN=Pulmonary hypertension; MAPCAs=Major aorto pulmonary collateral arteries; ASD=Atrial septal defect; TR=Tricuspid regurgitation; SV=Single ventricle; LPAJS=Left pulmonary artery junctional stenosis; ECD=Endocardial cushion defect.

Table 2
Categories and Concepts
jkan-40-411-i002

Notes

This article is based on a part of the first author's doctoral thesis from Yonsei University.

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