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<article xml:lang="KO" article-type="research-article">

<front>
<journal-meta>
<journal-id journal-id-type="nlm-ta">J Korean Acad Nurs</journal-id>
<journal-id journal-id-type="publisher-id">JKAN</journal-id>
<journal-title-group>
<journal-title>Journal of Korean Academy of Nursing</journal-title>
</journal-title-group>
<issn pub-type="ppub">2005-3673</issn>
<issn pub-type="epub">2093-758X</issn>
<publisher>
<publisher-name>Korean Society of Nursing Science</publisher-name>
</publisher>
</journal-meta>

<article-meta>
<article-id pub-id-type="doi">10.4040/jkan.2014.44.6.639</article-id>
<article-categories>
<subj-group>
<subject>Original Article</subject>
</subj-group>
</article-categories>
<title-group>
<article-title>Life Experiences of Korean Patients with Hansen's Disease in Sorok Island Hospital</article-title>
</title-group>

<contrib-group>

<contrib contrib-type="author" corresp="yes">
<name>
<surname>Yang</surname>
<given-names>Ya Ki</given-names>
</name>
<xref ref-type="aff" rid="A1"></xref>
</contrib>

</contrib-group>

<aff id="A1">Department of Nursing, Wonkwang University, Iksan, Korea.</aff>

<author-notes>
<corresp>Address reprint requests to: Yang, Ya Ki. Department of Nursing, Wonkwang University, 460 Iksan-daero, Iksan 570-749, Korea. Tel: +82-63-850-6019, Fax: +82-63-850-6060, <email>ykyang@wku.ac.kr</email>
</corresp>
</author-notes>

<pub-date pub-type="ppub">
<month>12</month>
<year>2014</year>
</pub-date>
<pub-date pub-type="epub">
<day>31</day>
<month>12</month>
<year>2014</year>
</pub-date>
<volume>44</volume>
<issue>6</issue>
<fpage>639</fpage>
<lpage>648</lpage>

<history>
<date date-type="received">
<day>05</day>
<month>08</month>
<year>2014</year>
</date>
<date date-type="rev-recd">
<day>21</day>
<month>08</month>
<year>2014</year>
</date>
<date date-type="accepted">
<day>02</day>
<month>10</month>
<year>2014</year>
</date>
</history>

<permissions>
<copyright-statement>&#x00A9; 2014 Korean Society of Nursing Science</copyright-statement>
<copyright-year>2014</copyright-year>
<license license-type="open-access" xlink:href="http://creativecommons.org/licenses/by-nd/4.0/">
<license-p>This is an Open Access article distributed under the terms of the Creative Commons Attribution NoDerivs License. (<ext-link ext-link-type="uri" xmlns:xlink="http://www.w3.org/1999/xlink" xlink:href="http://creativecommons.org/licenses/by-nd/4.0/">http://creativecommons.org/licenses/by-nd/4.0/</ext-link>)
If the original work is properly cited and retained without any modification or reproduction, it can be used and re-distributed in any format and medium.</license-p>
</license>
</permissions>

<abstract>
<sec>
<title>Purpose</title>
<p>The purpose of this study was to identify life experiences of Korean patients with Hansen's disease (leprosy).</p>
</sec>
<sec>
<title>Methods</title>
<p>For this study, 5 participants from Sorok Island Hospital were purposively chosen. Data were collected through in-depth individual interviews from June to July 2014. Data analysis method was based on Colaizzi's approach.</p>
</sec>
<sec>
<title>Results</title>
<p>The study results showed that experiences of patients with Hansen's disease consisted of 14 themes and six theme clusters: 1) Bad disease approaching as fate; 2) Family breakup and far from the village; 3) New life in Sorok Island Hospital; 4) Treatment of Hansen's disease and disability; 5) Life in the disease community; 6) Comfort and hope of life.</p>
</sec>
<sec>
<title>Conclusion</title>
<p>The findings of this study indicate that health care professionals should pay attention to patients with Hansen's disease not only to reduce their physical and psychological suffering, but also to help the community and public culture to reduce the social stigma surrounding this disease and causing suffering for the patients. The results of the present study can help us to have a better understanding of various aspects of patients' lived experiences.</p>
</sec>
</abstract>

<kwd-group>
<kwd>Hansen's disease</kwd>
<kwd>Leprosy</kwd>
<kwd>Life experiences</kwd>
<kwd>Infection</kwd>
<kwd>Phenomenography</kwd>
</kwd-group>

<funding-group>
  <award-group>
    <funding-source country="KR">Korean Society of Nursing Science</funding-source>
  </award-group>
</funding-group>


</article-meta>
</front>

<back>

<fn-group>
<fn fn-type="supported-by">
  <p>This study was supported by the Research Grant of the Korean Society of Nursing Science in 2012.</p>
</fn>
</fn-group>

    <ref-list>

  <ref id="B1">
    <label>1</label>
    <element-citation publication-type="book">
      <person-group person-group-type="author">
        <name>
          <surname>Chae</surname>
          <given-names>GT</given-names>
        </name>
      </person-group>
      <source>Review of history of institute of Hansen's disease in the Catholic Medical College: (1961.4.1-2011.4.1)</source>
      <publisher-loc>Seoul</publisher-loc>
      <publisher-name>Institute of Hansen's Disease</publisher-name>
      <year>2011</year>
    </element-citation>
  </ref>

  <ref id="B2">
    <label>2</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Jung</surname>
          <given-names>KS</given-names>
        </name>
      </person-group>
      <article-title>Dissolution of settlement village and network of migration in Hansen's disease ex-patient communities</article-title>
      <source>Soc Hist</source>
      <year>2006</year>
      <volume>69</volume>
      <fpage>43</fpage>
      <lpage>81</lpage>
    </element-citation>
  </ref>

  <ref id="B3">
    <label>3</label>
    <element-citation publication-type="book">
      <collab>National Human Rights Commission of Korea</collab>
      <source>Survey on the human rights of Hansen's</source>
      <publisher-loc>Seoul</publisher-loc>
      <publisher-name>Author</publisher-name>
      <year>2005</year>
    </element-citation>
  </ref>

  <ref id="B4">
    <label>4</label>
    <element-citation publication-type="thesis">
          <person-group person-group-type="author">
            <name>
              <surname>Kim</surname>
              <given-names>JH</given-names>
            </name>
          </person-group>
          <source>The lived experience of leprosy patient [master's thesis]</source>
          <publisher-loc>Gwangju</publisher-loc>
          <publisher-name>Chosun University</publisher-name>
          <year>2004</year>
        </element-citation>
      </ref>

  <ref id="B5">
    <label>5</label>
    <element-citation publication-type="webpage">
      <collab>Korean Hansen Welfare Association</collab>
        <source>Cases under of service in 2013 [Internet]</source>
        <publisher-loc>Uiwang</publisher-loc>
        <publisher-name>Author</publisher-name>
        <year>2013</year>
        <date-in-citation content-type="access-date">cited 2014 July 3</date-in-citation>
        <comment>Available from: <ext-link ext-link-type="uri" xmlns:xlink="http://www.w3.org/1999/xlink" xlink:href="http://www.khwa.or.kr/sub.asp?maincode=482&#x0026;sub_sequence=529&#x0026;sub_sub_sequence=&#x0026;strBoardID=kui_529&#x0026;exec=VIEW&#x0026;intPage=&#x0026;intCategory=0&#x0026;strSearchCategory=|s_name|s_subject|&#x0026;strSearchWord=&#x0026;intSeq=548">http://www.khwa.or.kr/sub.asp?maincode=482&#x0026;sub_sequence=529&#x0026;sub_sub_sequence=&#x0026;strBoardID=kui_529&#x0026;exec=VIEW&#x0026;intPage=&#x0026;intCategory=0&#x0026;strSearchCategory=|s_name|s_subject|&#x0026;strSearchWord=&#x0026;intSeq=548</ext-link></comment>
        </element-citation>
      </ref>

  <ref id="B6">
    <label>6</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Cross</surname>
          <given-names>H</given-names>
        </name>
        <name>
          <surname>Choudhary</surname>
          <given-names>R</given-names>
        </name>
      </person-group>
      <article-title>STEP: An intervention to address the issue of stigma related to leprosy in Southern Nepal</article-title>
      <source>Lepr Rev</source>
      <year>2005</year>
      <volume>76</volume>
      <issue>4</issue>
      <fpage>316</fpage>
      <lpage>324</lpage>
    </element-citation>
  </ref>

  <ref id="B7">
    <label>7</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Shin</surname>
          <given-names>SY</given-names>
        </name>
      </person-group>
      <article-title>Social distance towards people affected by Hansen' disease</article-title>
      <source>Korean J Care Manag</source>
      <year>2012</year>
      <volume>7</volume>
      <fpage>177</fpage>
      <lpage>200</lpage>
    </element-citation>
  </ref>

  <ref id="B8">
    <label>8</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Kim</surname>
          <given-names>KH</given-names>
        </name>
        <name>
          <surname>Chung</surname>
          <given-names>IY</given-names>
        </name>
        <name>
          <surname>Seo</surname>
          <given-names>SW</given-names>
        </name>
      </person-group>
      <article-title>The effect of augmented lateral tarsal strip for paralytic ectropion in leprosy patients</article-title>
      <source>J Korean Ophthalmol Soc</source>
      <year>2009</year>
      <volume>50</volume>
      <issue>4</issue>
      <fpage>497</fpage>
      <lpage>504</lpage>
      <comment><ext-link ext-link-type="uri" xmlns:xlink="http://www.w3.org/1999/xlink" xlink:href="http://dx.doi.org/10.3341/jkos.2009.50.4.497">http://dx.doi.org/10.3341/jkos.2009.50.4.497</ext-link></comment>
    </element-citation>
  </ref>

  <ref id="B9">
    <label>9</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Kim</surname>
          <given-names>SS</given-names>
        </name>
        <name>
          <surname>Kang</surname>
          <given-names>YS</given-names>
        </name>
      </person-group>
      <article-title>A study on spirituality and death attitudes of terminal patients with Hansen's disease</article-title>
      <source>Ment Health Soc Work</source>
      <year>2007</year>
      <volume>25</volume>
      <fpage>41</fpage>
      <lpage>73</lpage>
    </element-citation>
  </ref>

  <ref id="B10">
    <label>10</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Choi</surname>
          <given-names>BT</given-names>
        </name>
      </person-group>
      <article-title>Son Yang-Won and leprosy relief activities centered around the Aeyangwon church</article-title>
      <source>Christ Hist Korea</source>
      <year>2011</year>
      <volume>34</volume>
      <fpage>191</fpage>
      <lpage>215</lpage>
    </element-citation>
  </ref>

  <ref id="B11">
    <label>11</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Jung</surname>
          <given-names>KS</given-names>
        </name>
      </person-group>
      <article-title>The start and change of the modern leprosy control in colonial Korea</article-title>
      <source>Health Soc Sci</source>
      <year>1997</year>
      <volume>1</volume>
      <issue>1</issue>
      <fpage>1</fpage>
      <lpage>30</lpage>
    </element-citation>
  </ref>

  <ref id="B12">
    <label>12</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Jung</surname>
          <given-names>KS</given-names>
        </name>
      </person-group>
      <article-title>Historical development and social structure of disease community: A case of Iksan farm</article-title>
      <source>J Modern Soc Sci</source>
      <year>1998</year>
      <volume>9</volume>
      <fpage>157</fpage>
      <lpage>191</lpage>
    </element-citation>
  </ref>

  <ref id="B13">
    <label>13</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Joo</surname>
          <given-names>YJ</given-names>
        </name>
      </person-group>
      <article-title>Social works for the Hansen's disease patients in post-liberation Korea: Focusing on the works of Catholic organizations</article-title>
      <source>Res Found Korean Church Hist</source>
      <year>2007</year>
      <volume>29</volume>
      <fpage>221</fpage>
      <lpage>252</lpage>
    </element-citation>
  </ref>

  <ref id="B14">
    <label>14</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Park</surname>
          <given-names>KD</given-names>
        </name>
      </person-group>
      <article-title>Change of meaning in Sorok Island and actions taken in the Hansen community</article-title>
      <source>Korean Reg Sociol</source>
      <year>2010</year>
      <volume>11</volume>
      <issue>2</issue>
      <fpage>91</fpage>
      <lpage>130</lpage>
    </element-citation>
  </ref>

  <ref id="B15">
    <label>15</label>
    <element-citation publication-type="thesis">
          <person-group person-group-type="author">
            <name>
              <surname>Kang</surname>
              <given-names>TK</given-names>
            </name>
          </person-group>
          <source>A study on the patients with Hansen's disease who experienced suicidal urge and overcame suicide [master's thesis]</source>
          <publisher-loc>Daegu</publisher-loc>
          <publisher-name>Daegu University</publisher-name>
          <year>2013</year>
        </element-citation>
      </ref>

  <ref id="B16">
    <label>16</label>
    <element-citation publication-type="book">
      <person-group person-group-type="author">
        <name>
          <surname>Colaizzi</surname>
          <given-names>PF</given-names>
        </name>
      </person-group>
      <source>Psychological research as the phenomenologist views it</source>
      <publisher-loc>New York, NY</publisher-loc>
      <publisher-name>Oxford University Press</publisher-name>
      <year>1978</year>
    </element-citation>
  </ref>
 
  <ref id="B17">
    <label>17</label>
    <element-citation publication-type="book">
      <person-group person-group-type="author">
        <name>
          <surname>Lee</surname>
          <given-names>HK</given-names>
        </name>
        <name>
          <surname>Yang</surname>
          <given-names>YH</given-names>
        </name>
        <name>
          <surname>Gu</surname>
          <given-names>MO</given-names>
        </name>
        <name>
          <surname>Eun</surname>
          <given-names>Y</given-names>
        </name>
      </person-group>
      <source>Introduction of nursing research</source>
      <edition>4th ed</edition>
      <publisher-loc>Seoul</publisher-loc>
      <publisher-name>Hyunmoon</publisher-name>
      <year>2009</year>
    </element-citation>
  </ref>

  <ref id="B18">
    <label>18</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>van Manen</surname>
          <given-names>M</given-names>
        </name>
      </person-group>
      <article-title>Writing qualitatively, or the demands of writing</article-title>
      <source>Qual Health Res</source>
      <year>2006</year>
      <volume>16</volume>
      <issue>5</issue>
      <fpage>713</fpage>
      <lpage>722</lpage>
      <comment><ext-link ext-link-type="uri" xmlns:xlink="http://www.w3.org/1999/xlink" xlink:href="http://dx.doi.org/10.1177/1049732306286911">http://dx.doi.org/10.1177/1049732306286911</ext-link></comment>
    </element-citation>
  </ref>

  <ref id="B19">
    <label>19</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Morse</surname>
          <given-names>JM</given-names>
        </name>
        <name>
          <surname>Hutchinson</surname>
          <given-names>SA</given-names>
        </name>
        <name>
          <surname>Penrod</surname>
          <given-names>J</given-names>
        </name>
      </person-group>
      <article-title>From theory to practice: The development of assessment guides from qualitatively derived theory</article-title>
      <source>Qual Health Res</source>
      <year>1998</year>
      <volume>8</volume>
      <issue>3</issue>
      <fpage>329</fpage>
      <lpage>340</lpage>
    </element-citation>
  </ref>

  <ref id="B20">
    <label>20</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Heijnders</surname>
          <given-names>ML</given-names>
        </name>
      </person-group>
      <article-title>An exploration of the views of people with leprosy in Nepal concerning the quality of leprosy services and their impact on adherence behaviour</article-title>
      <source>Lepr Rev</source>
      <year>2004</year>
      <volume>75</volume>
      <issue>4</issue>
      <fpage>338</fpage>
      <lpage>347</lpage>
    </element-citation>
  </ref>

  <ref id="B21">
    <label>21</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Yoo</surname>
          <given-names>YS</given-names>
        </name>
        <name>
          <surname>Kim</surname>
          <given-names>BR</given-names>
        </name>
        <name>
          <surname>Cho</surname>
          <given-names>OH</given-names>
        </name>
      </person-group>
      <article-title>Stigma, self-esteem and quality of life of people with Hansen's disease</article-title>
      <source>J Muscle Joint Health</source>
      <year>2012</year>
      <volume>19</volume>
      <issue>3</issue>
      <fpage>272</fpage>
      <lpage>281</lpage>
      <comment><ext-link ext-link-type="uri" xmlns:xlink="http://www.w3.org/1999/xlink" xlink:href="http://dx.doi.org/10.5953/JMJH.2012.19.3.272">http://dx.doi.org/10.5953/JMJH.2012.19.3.272</ext-link></comment>
    </element-citation>
  </ref>

  <ref id="B22">
    <label>22</label>
    <element-citation publication-type="book">
      <person-group person-group-type="author">
        <name>
          <surname>Oh</surname>
          <given-names>SK</given-names>
        </name>
      </person-group>
      <source>A study on improvement of management skill for persons affected by leprosy living with their families in Seoul metropolitan area [master's thesis]</source>
      <publisher-loc>Cheonan</publisher-loc>
      <publisher-name>Dankook University</publisher-name>
      <year>2009</year>
    </element-citation>
  </ref>

  <ref id="B23">
    <label>23</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Cho</surname>
          <given-names>YS</given-names>
        </name>
      </person-group>
      <article-title>Depression, loneliness and coping in client with Hansen's disease</article-title>
      <source>Korean Lepr Bull</source>
      <year>2009</year>
      <volume>42</volume>
      <issue>1</issue>
      <fpage>99</fpage>
      <lpage>114</lpage>
    </element-citation>
  </ref>

  <ref id="B24">
    <label>24</label>
    <element-citation publication-type="book">
      <person-group person-group-type="editor">
        <name>
          <surname>Jung</surname>
          <given-names>KS</given-names>
        </name>
      </person-group>
      <source>Another home, our landscape</source>
      <publisher-loc>Jeollanam-do</publisher-loc>
      <publisher-name>Sorokdo National Hospital</publisher-name>
      <year>2011</year>
    </element-citation>
  </ref>

  <ref id="B25">
    <label>25</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Chang</surname>
          <given-names>SJ</given-names>
        </name>
      </person-group>
      <article-title>Lived experiences of nursing home residents in Korea</article-title>
      <source>Asian Nurs Res</source>
      <year>2013</year>
      <volume>7</volume>
      <issue>2</issue>
      <fpage>83</fpage>
      <lpage>90</lpage>
    </element-citation>
  </ref>

  <ref id="B26">
    <label>26</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Lee</surname>
          <given-names>JS</given-names>
        </name>
      </person-group>
      <article-title>A study on the moderating effects of social support in the relationship between the stigma and social avoidance &#x0026; distress of individuals with leprosy</article-title>
      <source>J Rehabil Res</source>
      <year>2011</year>
      <volume>15</volume>
      <issue>3</issue>
      <fpage>107</fpage>
      <lpage>130</lpage>
    </element-citation>
  </ref>

  <ref id="B27">
    <label>27</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Kim</surname>
          <given-names>SL</given-names>
        </name>
      </person-group>
      <article-title>Hansen's oral life histories and healing</article-title>
      <source>Korean J Med Hist</source>
      <year>2013</year>
      <volume>22</volume>
      <issue>2</issue>
      <fpage>389</fpage>
      <lpage>420</lpage>
    </element-citation>
  </ref>

  <ref id="B28">
    <label>28</label>
    <element-citation publication-type="journal">
      <person-group person-group-type="author">
        <name>
          <surname>Kim</surname>
          <given-names>HY</given-names>
        </name>
        <name>
          <surname>Eom</surname>
          <given-names>CH</given-names>
        </name>
      </person-group>
      <article-title>Search for humanities therapy utilizing oral history: Memory, trauma and history therapy</article-title>
      <source>Stud Humanit</source>
      <year>2010</year>
      <volume>24</volume>
      <fpage>361</fpage>
      <lpage>383</lpage>
    </element-citation>
  </ref>

    </ref-list>

</back>

<floats-group>

<table-wrap position="float" id="T1">
<label>Table 1</label>
<caption>
  <p>Life Experiences of Patients with Hansen's Disease</p>
</caption>
<graphic xmlns:xlink="http://www.w3.org/1999/xlink" xlink:href="jkan-44-639-i001"></graphic>
</table-wrap>

</floats-group>

</article>